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Schreck, Leonie D; Goutaki, Myrofora; Jörger, Philippa; Dexter, Katie; Manion, Michele; Christin-Maitre, Sophie; Maitre, Bernard; Kuehni, Claudia E; Pedersen, Eva S L (2024). Fertility care among people with primary ciliary dyskinesia. Pediatric pulmonology, 59(2), pp. 281-290. Wiley 10.1002/ppul.26743
Marthin, June K; Lucas, Jane S; Boon, Mieke; Casaulta, Carmen; Crowley, Suzanne; Destouches, Damien M S; Eber, Ernst; Escribano, Amparo; Haarman, Eric; Hogg, Claire; Maitre, Bernard; Marsh, Gemma; Martinu, Vendula; Moreno-Galdó, Antonio; Mussaffi, Huda; Omran, Heymut; Pohunek, Petr; Rindlisbacher, Bernhard; Robinson, Phil; Snijders, Deborah; ... (2021). International BEAT-PCD consensus statement for infection prevention and control for primary ciliary dyskinesia in collaboration with ERN-LUNG PCD Core Network and patient representatives. ERJ Open Research, 7(3) European Respiratory Society 10.1183/23120541.00301-2021
Goutaki, Myrofora; Papon, Jean-François; Boon, Mieke; Casaulta, Carmen; Eber, Ernst; Escudier, Estelle; Halbeisen, Florian S.; Harris, Amanda; Hogg, Claire; Honore, Isabelle; Jung, Andreas; Karadag, Bulent; Koerner-Rettberg, Cordula; Legendre, Marie; Maitre, Bernard; Nielsen, Kim G; Rubbo, Bruna; Rumman, Nisreen; Schofield, Lynne; Shoemark, Amelia; ... (2020). Standardised clinical data from patients with primary ciliary dyskinesia: FOLLOW-PCD. ERJ Open Research, 6(1), 00237-2019. European Respiratory Society 10.1183/23120541.00237-2019
Halbeisen, Florian S; Shoemark, Amelia; Barbato, Angelo; Boon, Mieke; Carr, Siobhan; Crowley, Suzanne; Hirst, Rob; Karadag, Bulent; Koerner-Rettberg, Cordula; Loebinger, Michael R; Lucas, Jane S; Maitre, Bernard; Mazurek, Henryk; Özçelik, Uğur; Martinů, Vendula; Schwerk, Nicolaus; Thouvenin, Guillaume; Tschanz, Stefan A.; Yiallouros, Panayiotis; Goutaki, Myrofora; ... (2019). Time trends in diagnostic testing for PCD in Europe - Research letter. European respiratory journal, 54(4), p. 1900528. European Respiratory Society 10.1183/13993003.00528-2019
Kouis, Panayiotis; Goutaki, Myrofora; Halbeisen, Florian S; Gioti, Ifigeneia; Middleton, Nicos; Amirav, Israel; Barbato, Angelo; Behan, Laura; Boon, Mieke; Emiralioglu, Nagehan; Haarman, Eric G; Karadag, Bulent; Koerner-Rettberg, Cordula; Lazor, Romain; Loebinger, Michael R; Maitre, Bernard; Mazurek, Henryk; Morgan, Lucy; Nielsen, Kim Gjerum; Omran, Heymut; ... (2019). Prevalence and course of disease after lung resection in primary ciliary dyskinesia: a cohort & nested case-control study. Respiratory research, 20(1), p. 212. BioMed Central 10.1186/s12931-019-1183-y
Lucas, Jane S; Gahleitner, Florian; Amorim, Adelina; Boon, Mieke; Brown, Philippa; Constant, Carolina; Cook, Simon; Crowley, Suzanne; Destouches, Damien M S; Eber, Ernst; Mussaffi, Huda; Haarman, Eric; Harris, Amanda; Koerner-Rettberg, Cordula; Kuehni, Claudia E.; Latzin, Philipp; Loebinger, Michael R; Lorent, Natalie; Maitre, Bernard; Moreno-Galdó, Antonio; ... (2019). Pulmonary exacerbations in patients with primary ciliary dyskinesia: an expert consensus definition for use in clinical trials. ERJ Open Research, 5(1), 00147-2018. European Respiratory Society 10.1183/23120541.00147-2018
