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Beydon, Nicole; Kouis, Panayotis; Marthin, June K; Latzin, Philipp; Colas, Murielle; Davis, Stephanie D; Haarman, Eric; Harris, Amanda Lea; Hogg, Claire; Kilbride, Emma; Kuehni, Claudia E; Marangu, Diana; Nielsen, Kim G; Pendergrast, Catherine; Robinson, Phil; Rumman, Nisreen; Rutter, Matthew; Walker, Woolf T; Ferkol, Thomas and Lucas, Jane S (2023). Nasal nitric oxide measurement in children for the diagnosis of primary ciliary dyskinesia: European Respiratory Society technical standard. European respiratory journal, 61(4), p. 2202031. European Respiratory Society 10.1183/13993003.02031-2022
Beydon, Nicole; Ferkol, Thomas; Harris, Amanda Lea; Colas, Murielle; Davis, Stephanie D; Haarman, Eric; Hogg, Claire; Kilbride, Emma; Kouis, Panayotis; Kuehni, Claudia E; Latzin, Philipp; Marangu, Diana; Marthin, June; Nielsen, Kim G; Robinson, Phil; Rumman, Nisreen; Rutter, Matthew; Walker, Woolf; Lucas, Jane S (2022). An international survey on nasal nitric oxide measurement practices for the diagnosis of primary ciliary dyskinesia. ERJ Open Research, 8(2), 00708-2021. European Respiratory Society 10.1183/23120541.00708-2021
Marthin, June K; Lucas, Jane S; Boon, Mieke; Casaulta, Carmen; Crowley, Suzanne; Destouches, Damien M S; Eber, Ernst; Escribano, Amparo; Haarman, Eric; Hogg, Claire; Maitre, Bernard; Marsh, Gemma; Martinu, Vendula; Moreno-Galdó, Antonio; Mussaffi, Huda; Omran, Heymut; Pohunek, Petr; Rindlisbacher, Bernhard; Robinson, Phil; Snijders, Deborah; ... (2021). International BEAT-PCD consensus statement for infection prevention and control for primary ciliary dyskinesia in collaboration with ERN-LUNG PCD Core Network and patient representatives. ERJ Open Research, 7(3) European Respiratory Society 10.1183/23120541.00301-2021
Gardner, Laura E.; Horton, Katie L.; Shoemark, Amelia; Lucas, Jane S.; Nielsen, Kim G.; Kobbernagel, Helene; Rubbo, Bruna; Hirst, Robert A.; Kouis, Panayiotis; Ullmann, Nicola; Reula, Ana; Rumman, Nisreen; Mitchison, Hannah M.; Pinto, Andreia; Richardson, Charlotte; Schmidt, Anne; Thompson, James; Gaupmann, René; Dabrowski, Maciej; Mill, Pleasantine; ... (2020). Proceedings of the 4th BEAT-PCD Conference and 5th PCD Training School [meeting report]. BMC Proceedings, 14(S8), p. 7. BioMed Central 10.1186/s12919-020-00191-3
Kobbernagel, Helene E; Buchvald, Frederik F; Haarman, Eric G; Casaulta, Carmen; Collins, Samuel A; Hogg, Claire; Kuehni, Claudia E.; Lucas, Jane S; Moser, Claus E; Quittner, Alexandra L; Raidt, Johanna; Rosthøj, Susanne; Sørensen, Anne L; Thomsen, Kim; Werner, Claudius; Omran, Heymut; Nielsen, Kim G (2020). Efficacy and safety of azithromycin maintenance therapy in primary ciliary dyskinesia (BESTCILIA): a multicentre, double-blind, randomised, placebo-controlled phase 3 trial. The lancet. Respiratory medicine, 8(5), pp. 493-505. Elsevier 10.1016/S2213-2600(20)30058-8
Goutaki, Myrofora; Papon, Jean-François; Boon, Mieke; Casaulta, Carmen; Eber, Ernst; Escudier, Estelle; Halbeisen, Florian S.; Harris, Amanda; Hogg, Claire; Honore, Isabelle; Jung, Andreas; Karadag, Bulent; Koerner-Rettberg, Cordula; Legendre, Marie; Maitre, Bernard; Nielsen, Kim G; Rubbo, Bruna; Rumman, Nisreen; Schofield, Lynne; Shoemark, Amelia; ... (2020). Standardised clinical data from patients with primary ciliary dyskinesia: FOLLOW-PCD. ERJ Open Research, 6(1), 00237-2019. European Respiratory Society 10.1183/23120541.00237-2019
Farley, Hannah; Rubbo, Bruna; Bukowy-Bieryllo, Zuzanna; Fassad, Mahmoud; Goutaki, Myrofora; Harman, Katharine; Hogg, Claire; Kuehni, Claudia E; Lopes, Susana; Nielsen, Kim G; Norris, Dominic P; Reula, Ana; Rumman, Nisreen; Shoemark, Amelia; Wilkins, Hannah; Wisse, Agatha; Lucas, Jane S; Marthin, June K (2018). Proceedings of the 3rd BEAT-PCD Conference and 4th PCD Training School. BMC Proceedings, 12(Suppl 16), p. 64. BioMed Central 10.1186/s12919-018-0161-6
Halbeisen, Florian S; Goutaki, Myrofora; Spycher, Ben D; Amirav, Israel; Behan, Laura; Boon, Mieke; Hogg, Claire; Casaulta, Carmen; Crowley, Suzanne; Haarman, Eric G; Karadag, Bulent; Koerner-Rettberg, Cordula; Loebinger, Michael R; Mazurek, Henryk; Morgan, Lucy; Nielsen, Kim G; Omran, Heymut; Santamaria, Francesca; Schwerk, Nicolaus; Thouvenin, Guillaume; ... (2018). Lung function in patients with Primary Ciliary Dyskinesia: an iPCD Cohort study. European respiratory journal, 52(2), p. 1801040. European Respiratory Society 10.1183/13993003.01040-2018
Halbeisen, Florian; Hogg, Claire; Alanin, Mikkel C.; Bukowy-Bieryllo, Zuzanna; Dasi, Francisco; Duncan, Julie; Friend, Amanda; Goutaki, Myrofora; Jackson, Claire; Keenan, Victoria; Harris, Amanda; Hirst, Robert A.; Latzin, Philipp; Marsh, Gemma; Nielsen, Kim; Norris, Dominic; Pellicer, Daniel; Reula, Ana; Rubbo, Bruna; Rumman, Nisreen; ... (2018). Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school: part 1. BMC Proceedings, 12(Suppl 2), p. 1. BioMed Central 10.1186/s12919-018-0098-9
Goutaki, Myrofora; Maurer, Elisabeth; Halbeisen, Florian S; Amirav, Israel; Barbato, Angelo; Behan, Laura; Boon, Mieke; Casaulta, Carmen; Clement, Annick; Crowley, Suzanne; Haarman, Eric; Hogg, Claire; Karadag, Bulent; Koerner-Rettberg, Cordula; Leigh, Margaret W; Loebinger, Michael R; Mazurek, Henryk; Morgan, Lucy; Nielsen, Kim G; Omran, Heymut; ... (2017). The international primary ciliary dyskinesia cohort (iPCD Cohort): methods and first results. European respiratory journal, 49(1), p. 1601181. European Respiratory Society 10.1183/13993003.01181-2016
Lucas, Jane S; Barbato, Angelo; Collins, Samuel A; Goutaki, Myrofora; Behan, Laura; Caudri, Daan; Dell, Sharon; Eber, Ernst; Escudier, Estelle; Hirst, Robert A; Hogg, Claire; Jorissen, Mark; Latzin, Philipp; Legendre, Marie; Leigh, Margaret W; Midulla, Fabio; Nielsen, Kim G; Omran, Heymut; Papon, Jean-Francois; Pohunek, Petr; ... (2017). European Respiratory Society guidelines for the diagnosis of primary ciliary dyskinesia. European respiratory journal, 49(1), p. 27836958. European Respiratory Society 10.1183/13993003.01090-2016
Rubbo, Bruna; Behan, Laura; Dehlink, Eleonora; Goutaki, Myrofora; Hogg, Claire; Kouis, Panayiotis; Kuehni, Claudia E; Latzin, Philipp; Nielsen, Kim; Norris, Dominic; Nyilas, Sylvia; Price, Mareike; Lucas, Jane S. (2016). Proceedings of the COST action BM1407 inaugural conference BEAT-PCD: translational research in primary ciliary dyskinesia - bench, bedside, and population perspectives. BMC Proceedings, 10(S9), p. 66. BioMed Central 10.1186/s12919-016-0067-0
Kobbernagel, Helene E; Buchvald, Frederik F; Haarman, Eric G; Casaulta Aebischer, Carmen; Collins, Samuel A; Hogg, Claire; Kühni, Claudia; Lucas, Jane S; Omran, Heymut; Quittner, Alexandra L; Werner, Claudius; Nielsen, Kim G (2016). Study protocol, rationale and recruitment in a European multi-centre randomized controlled trial to determine the efficacy and safety of azithromycin maintenance therapy for 6 months in primary ciliary dyskinesia. BMC pulmonary medicine, 16(1), p. 104. BioMed Central 10.1186/s12890-016-0261-x
Behan, Laura; Dimitrov, Borislav D; Kuehni, Claudia E; Hogg, Claire; Carroll, Mary; Evans, Hazel J; Goutaki, Myrofora; Harris, Amanda; Packham, Samantha; Walker, Woolf T; Lucas, Jane S (2016). PICADAR: a diagnostic predictive tool for primary ciliary dyskinesia. European respiratory journal, 47(4), pp. 1103-1112. European Respiratory Society 10.1183/13993003.01551-2015
Werner, Claudius; Lablans, Martin; Ataian, Maximilian; Raidt, Johanna; Wallmeier, Julia; Große-Onnebrink, Jörg; Kuehni, Claudia E; Haarman, Eric G; Leigh, Margaret W; Quittner, Alexandra L; Lucas, Jane S; Hogg, Claire; Witt, Michal; Priftis, Kostas N; Yiallouros, Panayiotis; Nielsen, Kim G; Santamaria, Francesca; Ückert, Frank; Omran, Heymut (2016). An international registry for primary ciliary dyskinesia. European respiratory journal, 47(3), pp. 849-859. European Respiratory Society 10.1183/13993003.00776-2015
Regamey, Nicolas; Balfour-Lynn, Ian; Rosenthal, Mark; Hogg, Claire; Bush, Andrew; Davies, Jane C (2009). Time required to obtain endobronchial biopsies in children during fiberoptic bronchoscopy. Pediatric pulmonology, 44(1), pp. 76-9. Hoboken, N.J.: Wiley-Blackwell 10.1002/ppul.20949
